2026

Crellin, E; De Coote, K; Tracey, F; Burton, K B; Rand, S; Allan, S; Wolters, A T; Goodman, C; Lloyd, T.
Traversing the data landscape: insights and recommendations from a case study using novel linkage of care home and health data.

2025

Davey, V; Healey J; Liddle, J; Beresford, B; Rand, S; Goodman, C; Spilsbury, K; Hanratty, B. (2025) Routine data collection in home care: a national survey of home care providers in England

Allan, S., Rand, S., Towers, AM. et al. (2025) Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England. Health Qual Life Outcomes 23(33).

Towers A-M, Rand S, Allan S, Webster LA, Palmer S, Carroll R, et al. (2025) Assessing the feasibility of measuring residents’ quality of life in English care homes and the construct validity and internal consistency of measures completed by staff proxy: a cross-sectional study. BMJ Open, 15(1).

Gordon, A. L., Rand, S., Crellin, E., Allan, S., Tracey, F., De Corte, K., Lloyd, T., Brine, R., Carroll, R. E., Towers, A.-M., Burton, J. K., Akdur, G., Hanratty, B., Webster, L., Palmer, S., Jones, L., Meyer, J., Spilsbury, K., Killett, A., … Goodman, C. (2025). Piloting a minimum data set for older people living in care homes in England: A developmental study. Age and Ageing, 54(1).

Killett, A., Micklewright, K., Carroll, R., Akdur, G., Allinson, E., Crellin, L., de Corte, K., Fox, M., Hanratty, B., Irvine, L., Jones, L., Kelly, M., Lloyd, T., Meyer, J., Spilsbury, K., Towers, M., Tracey, F., Willmott, J., & Goodman, C. (2025). Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes. Health Expectations, 28(1).

2024

Healey J, Davey V, Liddle J, O’Rourke G, Hanratty B & Beresford B (2024) UK homecare providers’ views about, and experiences of, digitalisation: A national survey. Digit Health. May 22;10:20552076241255477.

Rand, S., Towers, A.-M., Allan, S., Webster, L., Palmer, S., Carroll, R., Gordon, A., Akdur, G., & Goodman, C. (2024). Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff. Quality of Life Research.

Irvine, L., Burton, J. K., Ali, M., Booth, J., Desborough, J., Logan, P., Moniz-Cook, E., Surr, C., Wright, D. and Goodman, C. (2024) Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA), International Journal of Population Data Science, 8(6).

Micklewright K, Killett A, Akdur G, Biswas P, Blades P, Irvine L, Jones L, Meyer J, Ravenscroft N, Woodhead H & Goodman C (2024). Activity provider-facilitated patient and public involvement with care home residents. Research Involvement and Engagement, 10(7).

2023

Kelly, M.,  Allison, E. and Micklewright, K. (2023). Health and social care research from the frontline: perspectives from care home staff. Nursing and Residential Care. Vol.25, No.11.

(If you are having problems accessing the article using the link below, please contact dacha@herts.ac.uk and we will send you a copy)

Hanratty, B, Wolters, AT, Towers, A-M, Spilsbury, K, Meyer, J, Killett, A, Jones, L, Gordon, A, Burton, JK, Akdur, G, Irvine, L, Warmoth, K, Liddle, J and Goodman, C. (2023). Data Collection in Care Homes for Older Adults: A National Survey in England. Journal of Long Term Care, (2023), pp. 288–296.

Kelly, S., Cowan, A., Akdur, G., Irvine, L., Peryer, G., Welsh, S., Rand, S., Lang, I. A., Towers, A.-M., Spilsbury, K., Killett, A., Gordon, A. L., Hanratty, B., Jones, L., Meyer, J., Goodman, C., & Burton, J. K. (2023) Outcome measures from international older adult care home intervention research: a scoping review, Age and Ageing, Volume 52, Issue 5.

Towers, A-M., Gordon, A., Wolters, A., Allen, S., Rand, S., webster, L., Brine, R., Crellin, E., De Corte, K., Irvine, L., Akdur, G., Burton, J., Hanratty, B., Killett, A., Meyer, J., Jones, L. & Goodman, C. (2023) Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study, BMJ Open, Volume 13, Issue 2.

Spilsbury, K., Peryer, G., Devi, R., Haunch, K., Jordao, M., Thompson, C., Goodman, C., (2023) On your marks, get set, pause: what care home teams should consider before partnering with a trial research group, Nursing and Residential Care, Volume 25, Issue 1.

2022

Burton JK, Wolters AT, Towers AM, Jones L, Meyer J, Gordon AL, Irvine L, Hanratty B, Spilsbury K, Peryer G, Rand S, Killett A, Akdur G, Allan S, Biswas P, Goodman C. (2022) Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles, The Lancet Healthy Longevity, Volume 3, Issue 3.

Peryer G, Kelly S, Blake J, Burton JK, Irvine L, Cowan A, Akdur G, Killett A, Brand SL, Musa MK, Meyer J, Gordon AL, Goodman C. (2022) Contextual factors influencing complex intervention research processes in care homes: a systematic review and framework synthesis, Age and Ageing, Volume 51, Issue 3.

Musa, M.K., Akdur, G., Brand, S., Killett, A., Spilsbury, K., Peryer, G., Burton, J. K., Gordon, A. L., Hanratty, B., Towers, A-M., Irvine, L., Kelly, S., Jones, L., Meyer, J. & Goodman, C. (2022) The uptake and use of a minimum data set (MDS) for older people living and dying in care homes: a realist review. BMC Geriatr 22, 33.

2021

Irvine L, Burton JK, Ali M, Quinn TJ, Goodman C. (2021) Protocol for the development of a repository of individual participant data from randomised controlled trials conducted in adult care homes (the Virtual International Care Homes Trials Archive (VICHTA)). Trials 22, 157.

2020

Musa, M., Akdur, G., Hanratty, B., Kelly, S., Gordon, A., Peryer, G., Spilsbury, K., Killett, A., Burton, J., Meyer, J., Fortescue, S., Towers, A-M., Irvine, L. & Goodman, C. (2020) The uptake and use of a minimum data set (MDS) for older people living and dying in care homes in England – a realist review protocol. 14 Nov 2020, In: BMJ Open. 10, 11, 7 p., e040397.

Burton, J. K., Goodman, C., Guthrie, B., Gordon, A. L., Hanratty, B. and Quinn, T. J. (2020) Closing the UK care home data gap – methodological challenges and solutions: Closing the UK care home data gap. International Journal of Population Data Science, 5(4).

Hanratty, B., Burton, J. K., Goodman, C., Gordon, A. L., & Spilsbury, K. (2020) Covid-19 and lack of linked datasets for care homes. BMJ, 369.

Work Package 3 PROSPERO registration: “The uptake and use of the minimum data set (MDS) for older people living and dying in care homes in care home settings: a realist review” – 9 March 2020

Work Package 1 PROSPERO registration: “A systematic review of process and contextual factors that influence research implementation in care homes and identification of key measures and outcomes in care home research” – 10 January 2020